Checking in…

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The last couple weeks have been pretty good. We found out that a tropical storm will keep the doctors away. Two of our appointments got cancelled due to the storm last week. It made it a great week. No running around. I even stayed in my PJ’s a couple days. 

We’re on our third set of casts to correct the club feet. All seems to be going well with that. Yesterday we visited Logan’s GI doctor. We are working towards getting away from using the G-tube. Slowly we will start to feed him by mouth during the day. What he doesn’t take by bottle, we will finish giving to him by the feeding pump. At night he will stay on continual feeds (more for the sake of our sleeping). The visits to the pediatrician continue. As of Tuesday, 26th, Logan weighs 10 lbs. Next week we visit the Cardiologist. 

Logan received a floor gym from his Uncle Dave and Jackie. He seems to really like it. 

I’d attach pictures and the video I have but it doesn’t seem to be working for me. Bill will have to help me when he’s back in town. 

Till next time…Kim

Doctor visits

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We have the pleasure of seeing 3 doctors each week for various follow up appoinments. These include the following:

  • The pediatrician – located in Bradenton, he monitors Logan’s size, eating and other general baby growth stuff and answers general “what to do” questions we come up with.
  • The cardiologist – located in St Pete, they do an echo & ekg on him each week to monitor the heart valve issue to make sure we can continue to hold off on his next procedure for a few months.
  • The feet people – located in Tampa at the Shriner’s Hospital, they will strech his feet a little and put on a new cast each week. 

There are various doctor follow-ups at All Children’s hospital in St Pete for different departments that saw him while he was staying there. None of them are on a regular basis…just follow ups.

Tummy Time

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We have to be careful when it comes to tummy time since there is the feeding tube button attached to his belly and sticking out about 3/4″.  So we took and a foam pad and cut a hole into it to support him and keep pressure off the button.

The first attempt at tummy time did not go well, he started getting mad within 30 seconds. The second attempt he slept in that position for about 30 minutes. And the other times we have tried it he has been successful and just lifts his head to look around. He can only hold it up for a few seconds but he is improving. I’m sure it is a nice change from laying around on his back all day & night.

Tummy Time

Tummy Time

Aug 15, 2008

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We apologize for the lack of updates since we have been home. We have been very busy enjoying Logan at home, going to dr. appointments and trying to get into a routine with him. For the first week he seemed pretty content except for some rough spots that seemed to be gas related. We had our first visit to his pediatrician and his first cardiologist checkup. Nothing new from either dr but they are going to keep a close eye on things since we will be visiting each of them once a week of a while.

On Wed we went to the Shriner’s hospital in Tampa to talk about getting his club feet fixed. After waiting 2 hours to seem them we talked to someone, then had x-rays taken, then had casts put on. We were a little shocked since we were just expecting a consult but both figured it was better to start this process sooner than later. So now we get to vivst them each week too. Each week they will stretch his feet a little further and put on new casts. After 5-6 weeks his feet should be straight but probably point too far down. Then they will do a little procedure involving cutting heel tendon which will let his foot sit in the correct position. Then they will cast some more while that heals. We get 3 more weeks of the casts then 3 months of wearing a brace 24/7 that can only be remove for baths. Once the 3 months is up then the brace must only be worn during bedtime & naps for 3 years.

The casts have added another level of frustration for all of us. It makes Logan more difficult to hold & change diapers. It also makes him really mad since he cannot move his legs like he was. This has caused some rough nights where he lets us no how unhappy he is every 20 minutes. Hopefully he will learn to accept them and calm down soon.

Casts to correct club feet

Casts to correct club feet

Aug 6, 2008

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Tuesday afternoon Logan finally made it home. We are so happy!!! He does have to have his feeding tube & feeding pump (which is on an IV pole) attached to him all the time so it is a little challenging moving him around, but I’m sure we will get used to that in a few days. It is a lot less stuff than he had on him at the hospital. They sent us home with a heart rate & oxygen % monitor too but we only use that when we cannot keep an eye on him like during naps & at night.

He made it through his first night home without any problems. One of the benefits of having the continuous feed on him is that he never wakes up because he is hungry. Instead we are woke up by the feeding pump alarm telling us it is empty every 3 hours, but that is better than a crying baby. He had his first bath at home last night. Kim wanted to get the hospital smell off him asap. I think it went pretty well. It is probably not going to be one of his favorite things to do but it was nothing compared to some of the other stuff he had to endure at the hospital.

Aug 2, 2008

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Yesterday’s procedure went fine. Logan was taken off the breathing tube (he had just for the surgery) before they put him back in his room. He was a little fussy at first but then his after surgery pain med kicked in and he slept for a few hours. By later afternoon he was awake and content again.

Based on the heart catheterization they think that they may be able to to wait a little while 1-6 months before having to do the 2nd heart surgery on him. They are still reviewing the pictures they took and plan to have a meeting with his heart surgeon on Monday night to make a final decision on the timing of his surgery. So Tues morning we will have a better idea of what the plan is for him.