Here’s how the last couple days have gone…

Sunday I arrived at the hospital to hear rumors of a discharge within 48 hours. Shortly thereafter Logan’s discharge paperwork was started and it was planned to be today, Tuesday. Also Bill’s parents arrived from PA.

So Monday Bill and I spent the day learning what we needed to for Logan’s care, picking up and receiving training on the feeding pump for home and going to the pharmacy to get his prescriptions filled for home. I had plans of spending the night at the hospital since they usually require a parent to stay over a night and do all the care for Logan. Bill and I went out to dinner with Bill’s parents and then I was dropped back off at the hospital. Shortly after I got into Logan’s room he had another episode where his stats (blood oxygen level) dropped. After getting him back on track the Dr. on night shift decided he wouldn’t go home Tuesday and that they would watch him for another day. Aiming now for a Wednesday discharge.

My stay over night consisted of setting up Logan’s feeding by pump, giving him his meds, pumping myself and about an hour or so of sleep every three hours. The plan was for Bill to come to the hospital this morning and I would then take the car back home, sleep, eat, pump, shower and possibly go back this afternoon. Just as Bill was arriving at the hospital a Dr. comes in and starts to tell me that when reviewing Logan’s Echo done the previous morning, they have noticed that the small obstruction in the valve that was repaired has gotten bigger over the last couple weeks and that he will need to have another heart cath. done to check it out and very possibly undergo another heart surgery. The heart surgery is inevitable, it’s just a matter of whether it can wait a month or so or if it needs to be done now.

So we’re back to not knowing when he will come home. On top of all that, I go to leave the hospital and it begins to downpour. The parking lot seems to be a half mile away from the entrance and I get wet…no scratch that…it was similar to what it would be like to sit in a bathtub of water with all your clothes and shoes on.

Not having a good day to say the least. I’m going to go to bed now for an hour or so before I have to get back up and pump again.

Kim